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Day 2 of 31 ~ A Day in the Life ~

02 Oct

This morning, like every Tuesday morning, Jake had PREP (www.prepprog.org).

“What is PREP?!” you ask…
I will go into a little more depth about PREP later on this month, but the gist is that the PREP Program is an organization in Calgary geared specifically towards individuals with Down syndrome, and their goal is for inclusion into home, school, and community life.  PREP stands for “Pride. Respect. Empowerment. Progress”.

Jake LOVES PREP!  It is basically a “pre-preschool” program for him, geared towards getting him used to a structured environment.  They sing songs, have play time, snack time, gym time, and lots more.  Jake’s teachers are amazing, and we have nothing but fantastic things to say about the program.  More on this in weeks to come, but here is Jake, having fun during play time!

Today was actually quite a busy day for us.  After PREP Jake had a nap in the car, I grabbed a healthy McDonalds lunch (note sarcasm here!), and we headed off to see his Pediatric Cardiologist.  We have check-ups with this specialist every 6 months, since Jake was born with an ASD (Atrial Septal Defect), a small hole in his heart.  Here’s Jake, getting his routine ECG and Echo done.  What a trooper!

The last time we had an appointment with the Pediatric Cardiologist, the ASD was measuring 4-5mm, and our doctor started talking to me about possible surgery down the road.  I was devastated, discouraged, and heartbroken to think of the possibility of my precious little boy having to undergo heart surgery.  Since that appointment, the worry is always in the back of my head, and as today’s appointment approached, my stomach was in knots.

Today, 6 months later, his ASD measured only 2mm!!  Woo hoo!!  Talk about great news.  The doctor said that they will keep an eye on things over the next little while, but he is optimistic that we are headed in the right direction for a possible closing of the ASD on its own, thus avoiding heart surgery.  Best.  Day.  Ever.  I cannot even begin to put into words how elated I am, and while I know that we are not out of the woods yet, I feel cautiously optimistic and hopeful:)

That’s it for now!  More tomorrow…as I continue the 31 for 21 challenge.

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6 Comments

Posted by on October 2, 2012 in Uncategorized

 

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6 responses to “Day 2 of 31 ~ A Day in the Life ~

  1. Tara Robertson (@tarasview)

    October 2, 2012 at 10:02 pm

    PREP looks great! Early intervention programs are wonderful. And that is wonderful that you guys might get to avoid surgery – sending some prayers your way 🙂

     
  2. Jenny

    October 3, 2012 at 12:02 am

    Jake is looking so grown up! He is so handsome! That is great news about his heart 🙂

     
  3. Jen Cook

    October 3, 2012 at 9:43 am

    Karyn~ love your 31 for 21. Love Jake’s little red shoes. And love the little lamb wearing them! ADORABLE.

    Love your writing~ that wonderful heart of yours leaps out and draws in. Thank you for sharing your journey.

    Great news too. Hallelujah!

    Jen OXXOXO

     
  4. Cindy Schindel

    October 5, 2012 at 3:08 pm

    Your Jake is so beautiful. I loved the pictures! I am so looking forward to reading this everyday! Your family is a gift.

     

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