For those of you who remember, back at the beginning of October I wrote a blog about seeing an ENT (Ear, Nose, and Throat Specialist) about Jake’s ears / hearing. The verdict at that appointment was that she could not see his ear canals, meaning either a) they are too small still, b) they are squished together, or c) they are non-existent. In order to have a better idea, she ordered a CT scan for Jake, to take a detailed picture of his inner ear structures, and find out exactly what we are working with in regards to Jake’s capacity to hear.
That was back at the beginning of October. So, I waited. And I waited. And I waited some more. And I started to get antsy before Christmas, because it had been 2 1/2 months and we hadn’t heard anything about an appointment date. So, I started being “persistent” (a nice way to say I started bugging people to get on it and make sure it was being done!) And sure enough, at the beginning of January, we found out that his requisition had been “lost in cyberspace” and he didn’t even have an appointment day booked. GRRR…needless to say I was not a happy mother. I think they understood that though, and they rushed an appointment for him, which thankfully, we had yesterday.
They told me that he wasn’t allowed to eat for 8 hours before the test, or drink for 6 hours before, because there was a very good possibility that they would have to sedate him in order to accurately do the test. For a CT scan (which is like a very fancy x-ray) you have to lie perfectly still for a few minutes, in order for them to get the correct picture. For obvious reasons, it is hard to explain to an 8-month old who is starving that he needs to lie perfectly still and not move his head!! So they said that the majority of the time, they end up having to sedate these little guys in order to get the picture.
I put Jake down on the table, and watched them strap him in. Usually the parents are allowed to stay in the room while the test is happening, but I was not allowed to stay in the room for health concerns, so they kicked me out to the waiting room. It was THE LONGEST 15 minutes of my life! But my little Jake was a rock star. She did the test twice, because he was moving too much the first time, but she wanted to try it one more time before she opted for sedation, and HE DID IT!! So we walked out of there in 20 minutes, instead of having to be there for hours and hours (we would have had to be there until the sedation wore off).
What now? Now we wait (shocker!). We should have the results in about 5 days, and then FINALLY, we will have an idea as to what the next steps might be. So, the lesson learned is that persistence pays off. Had I not continually put a bug in people’s ears to check on the status of the referral, who knows how long we may have had to wait. And this is an important piece for Jake – the sooner he can hear properly, the less barriers to language learning he will have down the road.
Stay tuned for more news on the hearing front!