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Persistence Pays Off…

24 Jan

For those of you who remember, back at the beginning of October I wrote a blog about seeing an ENT (Ear, Nose, and Throat Specialist) about Jake’s ears / hearing.  The verdict at that appointment was that she could not see his ear canals, meaning either a) they are too small still, b) they are squished together, or c) they are non-existent.  In order to have a better idea, she ordered a CT scan for Jake, to take a detailed picture of his inner ear structures, and find out exactly what we are working with in regards to Jake’s capacity to hear.

That was back at the beginning of October.  So, I waited.  And I waited.  And I waited some more.  And I started to get antsy before Christmas, because it had been 2 1/2 months and we hadn’t heard anything about an appointment date.  So, I started being “persistent” (a nice way to say I started bugging people to get on it and make sure it was being done!)  And sure enough, at the beginning of January, we found out that his requisition had been “lost in cyberspace” and he didn’t even have an appointment day booked.  GRRR…needless to say I was not a happy mother.  I think they understood that though, and they rushed an appointment for him, which thankfully, we had yesterday.

They told me that he wasn’t allowed to eat for 8 hours before the test, or drink for 6 hours before, because there was a very good possibility that they would have to sedate him in order to accurately do the test.  For a CT scan (which is like a very fancy x-ray) you have to lie perfectly still for a few minutes, in order for them to get the correct picture.  For obvious reasons, it is hard to explain to an 8-month old who is starving that he needs to lie perfectly still and not move his head!!  So they said that the majority of the time, they end up having to sedate these little guys in order to get the picture.

I put Jake down on the table, and watched them strap him in.  Usually the parents are allowed to stay in the room while the test is happening, but I was not allowed to stay in the room for health concerns, so they kicked me out to the waiting room.  It was THE LONGEST 15 minutes of my life!  But my little Jake was a rock star.  She did the test twice, because he was moving too much the first time, but she wanted to try it one more time before she opted for sedation, and HE DID IT!!  So we walked out of there in 20 minutes, instead of having to be there for hours and hours (we would have had to be there until the sedation wore off).

What now?  Now we wait (shocker!).  We should have the results in about 5 days, and then FINALLY, we will have an idea as to what the next steps might be.  So, the lesson learned is that persistence pays off.  Had I not continually put a bug in people’s ears to check on the status of the referral, who knows how long we may have had to wait.  And this is an important piece for Jake – the sooner he can hear properly, the less barriers to language learning he will have down the road.

Stay tuned for more news on the hearing front!

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4 Comments

Posted by on January 24, 2012 in Uncategorized

 

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4 responses to “Persistence Pays Off…

  1. Dianne

    January 24, 2012 at 4:28 pm

    Good for you Karyn. You can be nice as you persist in getting what you need for Jake and it obviously paid off. Hope the results of the test will be clear so you know which direction to head.

     
  2. Laurie LeFave

    January 24, 2012 at 5:39 pm

    Karyn, this is such a privilege to hear how things are going for you guys – he is a beautiful little boy! We will pray for all these details surrounding Jake’s health and development. (Jake – what a great name…..)
    I just showed Jon his picture – would be wonderful to meet him sometime and your husband too!
    please give both the men in the Slater family hugs from the LeFaves and the warmest of greetings to your Mom and Dad and Karla and Dave etc etc.
    Prayers and love always,
    Laurie LeFave

     
  3. wattssue

    January 26, 2012 at 11:21 am

    There is no question that as our health systems are overworked and staff overwhelmed things get lost in cyberspace. I have been told by everyone, even those with the most serious diseases anda conditions, that to be quietly and kindly and understandingly persistent works great, Especially verbally sympathetic. While the “squeaky wheel ” may well get the “grease”, a cranky screaming one wont as you know from your mom’s experience.
    So you enter a life of persistence, patience and proactive care for this sweet little man.

    We know that your blog will be an encouragement to others and allow them to see their troubles are like yours and be a part of “team work” in learning to work with this condition, We look forward to seeing Jake and love him even though we havent!

     
  4. Laura

    January 29, 2012 at 10:32 am

    Way to go Karyn! I’m glad Jake got his hearing checking. Please keep us updated on the results. Ben has an appointment with an ENT in February.

     

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